This policy applies to all information received through the Platform, whether automatically, through direct user input or otherwise. For example, we receive information in any of the following ways:
Registration is required for use of this Platform. To enable us to generate your log-in to the Platform, we will collect certain Personally Identifiable Information from you and you will need to create a log-in password. When you register at our platform, if you wish to learn more about current or future clinical trials, we will ask you to provide information about you that will help us identify current or future clinical trials that may be of relevance to you. This may include demographic information and (in some circumstances) certain kinds of personal health information. We will collect information from you to assist with the identification of current and/or future trials. In some circumstances we may also collect information about you from other sources to supplement this information and help us identify potential research opportunities for you.
We use standard web logs that record basic data about people who visit our websites.
The following information is contained in these logs:
We do not normally seek to identify individuals from web logs including from their IP address and we do not disclose them to others. However, web logs may be used to identify an individual who we have reason to suspect tried to damage our website or use it in an unauthorized way. If we have reason to believe that there has been a violation of computer security or related laws, we may share our web logs with law enforcement agencies.
A cookie is a piece of data or a file that a website can send to your internet browser which may then store it on your computer. Cookies store information such as the pages you visited, the website features you used, and the amount of time you visited a particular webpage. They are also a means of keeping track of a user's preferences during a visit to a website. In order to provide persistence of a user’s preference, we store a unique identifier in a “temporary” or “session” cookie that only exists during the browser’s session with the website. When the user returns to the website, the identifier can be extracted from the session cookie and used to request detailed search information for that user from our database.
In addition, visitors clicking through to this Website from third-party services such as Facebook, Twitter, Instagram, Google, Bing or Yahoo! search engine sponsored ads will have a cookie placed on their computer for 30 days. This cookie allows Facebook, Twitter, Instagram, Google, Bing and Yahoo!, along with IQVIA, to measure the effectiveness of their search engine advertising.
Our uses of other technologies (“Technologies”) to automatically collect information through the website fall into the following general categories:
The following cookies may be used on our website:
Most browsers also allow you to block, disable and delete cookies. However, if you do that, the website may not work properly. You always have the right to refuse the storage of cookies on your computer, or to disable and/or delete cookies at any time as your browser or device permits. It is important that you understand that if you block, disable or otherwise reject our cookies, you may not be able to use the website or all of its interactive features or to use certain of its essential features. This may impact your ability to participate in a virtual clinical trial. We suggest that you accept cookies because they allow you to get the most out of your website experience (including your participation in a virtual clinical trial), and to take advantage of some of the website’s essential features.
For more information about the cookies we use, and to see what cookies have been set on your computer and how to manage, disable and delete them, visit www.allaboutcookies.org.
In addition, from time to time, server logs may be reviewed for security purposes – e.g., to detect unauthorized activity on the services. In such cases, server log data containing IP addresses may be shared with law enforcement bodies in order that they may identify users in connection with their investigation of the unauthorized activities.
IQVIA may use Personally Identifiable Information for other purposes for which we have a legitimate interest, such as contacting you for any future clinical services, individual or market research, anti-fraud protection, or any other purpose disclosed to you at the time you provide Personally Identifiable Information or with your consent.
We combine and use non-personal information (aggregated data) from our web logs and other Technologies to study how the Platform is being used. We will periodically analyze this aggregated data and use what we learn to make improvements to our Platform. In addition, we may share this aggregated data (which does not contain any information which can identify an individual) with our clinical research partners to assist them in better designing their Platforms or clinical trials.
IQVIA may use Personally Identifiable Information and other information about you to create anonymized and/or aggregated information, such as de-identified demographic information, de-identified location information, information about the computer or device from which you access IQVIA's Services, this Website, or other analyses we create related to our products and services or clinical research activities. Anonymized and/or aggregated information is used for a variety of functions, including the measurement of visitors’ interest in and use of various portions or features of the Services. Anonymized and aggregated information is not Personally Identifiable Information, and we may use such information in a number of ways, including research, internal analysis, analytics, and any other legally permissible purposes. We may share this information within IQVIA and with third parties for our or their purposes in an anonymized or aggregated form that is designed to prevent anyone from identifying you. We may use and disclose this anonymized, de-identified and/or aggregated information in any way permitted by applicable law.
If you request or otherwise provide appropriate permission, we will forward your Personally Identifiable Information (such as your name, year of birth, telephone number and/or email address and zip or postal code), and your personal health information and other information to the individuals and/or entities involved in conducting the clinical trial in which you are interested in participating. This may include a study concierge, patient guide, clinical trial support personnel or other study staff or third parties involved in conducting the clinical trial in which you are interested or are participating. We also will share information about your participation, or potential participation, in a clinical trial or other research activity, with the providers, researchers and others conducting the trial, consistent with applicable law and any applicable informed consent (if any).
We may share any information we receive with vendors and service providers in order to support your participation, or potential participation, in a clinical trial or other IQVIA activity and permit us to provide our services in connection with clinical trials or other activity. The types of service providers (processors) to whom we entrust personal information include, but are not limited to, service providers for: (i) provision of IT and related services; (ii) provision of information and services you have requested, including recruitment; (iii) payment processing; and (iv) customer service activities; and (v) in connection with the provision of the Platform. IQVIA has executed appropriate contracts with the service providers that prohibit them from using or sharing Personal Identifiable Information except as necessary to perform the contracted services on our behalf or to comply with applicable legal requirements.
It is possible that we may need to disclose Personally Identifiable Information about you in response to a law enforcement or national security request or legal process such as a search warrant, subpoena, or court order or in connection with an investigation or prosecution of suspected or actual illegal activity. Disclosures may also be made to comply with the law, protect our legal rights, or yours, or those of others’ including also property, or safety, to protect the security or integrity of our Platform, to take precautions against liability, or during emergencies if physical safety is believed to be at risk., or if we, in good faith, believe that disclosure is otherwise necessary or advisable. These types of disclosures are unlikely, but they are possible and so we describe them here.
We also may need to share information with regulators or others in government who oversee clinical trial activities, as described in the ICF.
We may also share your information with personnel involved in conducting research studies and/or our affiliates.
We may also share your information in the event of a corporate merger, acquisition or other corporate transaction related to IQVIA.
In some situations, you may access, update, correct or remove the Personally Identifiable Information you provided to us by sending an email to email@example.com. Your ability to correct, remove or delete your Personal Identifiable Information will depend in most situations on the informed consent agreement and the clinical trial protocol, which may require that information be maintained.
Non-identifiable information in our databases will not be deleted. Like all responsible Platforms, we maintain backup files as a protection against natural disasters, equipment failures, or other disruptions. Backup files protect you and us because they lessen the risk of loss of valuable data. Removing a record from our principal files does not remove that record from any of the backup systems. It may take up to 6 months before all information in a backup record is completely erased through the normal recycling of backup files. In the meantime, as long as backup records exist, they receive the same privacy and security protections as our other records.
You can ask us to provide you with information about and copies of your Personally Identifiable Information that we keep by sending an email to firstname.lastname@example.org You may also use this contact point for any other questions you may have about your rights in connection with your Personally Identifiable Information, including the ability to request that we remove, delete or port (transfer) your personal information, and or to ask that we correct or amend any inaccurate information. Please note that these rights are not automatic or absolute and may be subject to a fee, to the extent allowed by law and consistent with the ICF.
If you have any requests concerning your personal information or have any questions or comments about privacy, please send an email to email@example.com. Please include your contact information, the name of this Platform or service at issue, and a detailed description of your request or privacy concern.
Do Not Track (“DNT”) is a privacy preference that users can set in certain web browsers. DNT is a way for users to inform websites and services that they do not want certain information about their webpage visits collected over time and across websites or online services. Please note that we do not respond to or honor DNT signals or similar mechanisms transmitted by web browsers.
Processing Personally Identifiable Information in a secure manner is essential to our business and for your protection as a user. Maintaining a secure network and server system is in the best interests of our users and our research partners. We process and store Personally Identifiable Information using industry standard physical, technical, and administrative safeguards to secure such personal information against foreseeable risks such as unauthorized use, access, disclosure, destruction, and modification. Such security safeguards include use of encryption, password protection and user authenticated access rights. While we will use reasonable efforts to create a secure, safe and reliable Platform, the confidentiality of any communication or material transmitted to or from the Platform over the internet cannot be guaranteed.
The security of your Personally Identifiable Information is also, in part, your responsibility. When you register through the Platform, you should select passwords that are hard to guess and you must keep your passwords private and confidential. You should not share your password with anyone and should not store it in an unprotected format, such as taped to your computer or saved in your email. We do not accept liability for unintentional disclosure.
By using the Platform or providing Personally Identifiable Information to us, you agree that we may communicate with you electronically regarding security, privacy, and administrative issues relating to your use of the Platform. If we learn of a security system’s breach, we may attempt to notify you electronically by posting a notice on the Platform or sending an e-mail to you. You may have a legal right to receive this notice in writing.
Protecting the privacy of the very young is especially important. This Platform is not intended for or designed to attract minors. Users under the age of 18 or the age of legal majority in their country should not submit information to our Platform, and we do not collect, receive or knowingly keep information from any user we know or have reason to believe is a child under the age of 18 or age of legal majority, unless the information is provided by a parent or guardian. If a child has provided us with Personally Identifiable Information, the parent or guardian of that child should contact us if they want this information deleted from our files.
Users that are participating in pediatric trials will be asked to enter a date of birth. If the date of birth is under the age of 18 or legal majority in their country, the user will not be allowed to continue and submit the information unless that information is submitted by a parent or guardian.
The information you provide to us may be archived or stored periodically by us according to backup processes and will only be retained for as long as is required for the purposes for which it was collected, to provide our products and services to you, to support your participation in clinical trial activity, resolve disputes, establish legal defenses, conduct audits, pursue legitimate business purposes, enforce our agreements, and comply with applicable laws.
If any request remains unresolved, you may contact: IQVIA’s Privacy Office at PrivacyOfficer@iqvia.com
If you are a resident of the European Union or Switzerland and feel that any request or complaint remains unresolved, you may contact your national data protection authority for your EU Member State which can be located through the following European Commission website: https://ec.europa.eu/info/law/law-topic/data-protection/reform/what-are-data-protection-authorities-dpas_en.
For queries by post to IQVIA, please write to:
83 Wooster Heights Road, Danbury, CT 06810, USA
4820 Emperor Boulevard, Durham, North Carolina 27703, USA
Our website may contain links to other third-party websites. You should carefully review the privacy policies or notices and practices of other websites, as we cannot control or be responsible for their privacy policies, notices or practices. For links to other company web properties, please review those privacy terms as well as they may differ from those on this website.
Additionally, before we use Personally Identifiable Information for any new purpose not originally authorized by you, we will endeavor to provide information regarding the new purpose and give you the opportunity to opt out. Where your consent for the processing of Personally Identifiable Information is otherwise required by law or contract, we will endeavor to comply with the law or contract.