Your doctor should explain the goals, process and potential outcomes of the trial.Acknowledging your child’s concerns or fears should allow for an open and honest conversation that will make him/her feel involved in the decision to take part in a study. To start, educate yourself about the study and then talk to your child about what to expect.
This conversation should be tailored to your child’s level of comprehension and maturity to ensure he/she understands their role in the study.What to expect from your doctor
Feeling comfortable with your doctor
Before your child can participate in the study, they will be required to answer a range of personal questions, depending upon the type of study and your child’s age. These questions are used to understand whether the child is the right fit for a study. Some discussions may be embarrassing, such as talking about the risk of pregnancy with teenagers. Doctors are required to have these conversations for the safety of your child, but should make every effort to discuss it in an age-appropriate, culturally sensitive way. Empower your child to participate in the conversation, ask questions, and be a member of the decision-making team.