ALS (amyotrophic lateral sclerosis) – also known as Lou Gehrig’s disease and motor neurone disease – is a rare but devastating disease of the nervous system which worsens over time, eventually causing paralysis and often early death.
There is no cure and only one licensed treatment which can alter the course of the disease, but this is usually of limited benefit.
More effective treatments are desperately needed. This was highlighted by the ‘ice bucket challenge’, an activity to raise awareness and encourage donations for ALS, which went viral on social media in July/August 2014.
As with all diseases, the only way to make real progress in ALS is through dedicated and intensive clinical research, which in turn depends on committed volunteers who want to make a difference.
The tide is turning in ALS.
Around 500 research papers published in 2004 had risen to over 750 by 2008 and to over 1200 by 2012. It’s now apparent that over 25 genes may be involved in the development of the condition. It’s also known that ALS is probably not one disease, but many. The momentum for a breakthrough is here today.
If you have ALS or care for someone with ALS, please consider volunteering to enroll in a clinical trial.
You will be helping to create a better future for people like you.